EyeForPharma, Philadelphia – Pharmaceutical innovators are getting patients involved in every aspect of drug development, from clinical trial design to commercialization to peer-to-peer support. Here are six of our favorites from the #efpphilly stage:
The UPL addresses widely voiced concerns among consumers and health care advocates that communications about medicines are not designed for an optimal patient experience. It’s an open source project that worked with patients, caregivers and advocates over two years to co-create new principles and tools designed to change how we talk to patients and caregivers to better foster learning.
This approach works to give the patient voice as much impact and significance in the trial design as the many other voices that guide protocol development, including physicians, researchers, and key opinion leaders. One of the key tools is a protocol simulation workshop that helps patients identify tangible improvements in trials that will make the outcomes more relevant to their care and lives.
The CIMplicity® Right Start program is designed to support new patients with right-timed information and answers. It’s a personalized 12-week support journey with seven telephone calls covering key topics from injection training to rheumatoid arthritis management. 500+ new users register monthly. The program has a 67% Net promoter score and users have a 22% improvement in adherence over non users.
The Abbott India team developed a digital nurse to help people living with vertigo understand simple, repeatable exercises they could use to reduce symptoms. The tools used augmented reality to help them perfect the movements. 100% of the field force has shared the app with physicians and it’s earned over 10,000 downloads.
To help parents talk to their children about a neuroblastoma diagnosis, United Therapeutics developed Skivola, a young red panda who has high-risk neuroblastoma. He has many questions about neuroblastoma, such as “Why am I sick?”, “Did I get cancer because I was bad?”, and “Can I play with other kids when I go to the hospital?” The answers to those questions and many more about built into a storybook series.
This virtual community and panel gives UCB employees across the company a common platform to co-create an innovate with patients. The observations and ideas shared from the real lives of those patients bring a new lens and expertise to a wide variety of initiatives.